The last few months have been a tumultuous time for Simon. His seizures, both Nocturnal and Atonic grew in  frequency and severity resulting in numerous injuries. As a result his visits and stays in hospital increased. His medication was constantly adjusted to try to tackle a situation spiralling ever out of control. Through it all […]
I’ve been working on the series, ‘Living with Epilepsy’ for around 8 months now. One of the people I’ve been working very closely with has been Simon. Simon has acute epilepsy and suffers a range of seizure types one of which is called Atonic seizure or drop seizure. Simon’s drop attacks are pretty much the same as being knocked immediately unconscious.
Following Simon’s last visit to the gym where a Drop (Atonic) Seizure ended the session both prematurely and with injury it was of great importance to him that he get back there and face the challenge again. It was only nine days later I recieved the call to tell me he was heading back.
Plans are so hard to make when you live in a constant state of fear, always at the mercy of a seizure when least expected.
When I began searching for people to document for this series about living with Epilepsy I could never have imagined that two of the people I’d be photographing would be neighbours. Simon (43) lives next door to Simon and Kirsty.